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Dealing With Demntia

1994 my mother was diagnosed with yearold or a five year old and it makes
Alzheimers Disease. me feel goodto know that no matter what
At that time she had been demonstrating age (stage) she is today
memory deficits for at least two years. I will care for her and love her as she
My career had always been in the field of is.
Geriatrics, the care of the elderly. I Behavioral Issues: Behavior is not
had worked with countless families in intentional in Dementia.
caring for their elder family members at SOLUTIONS:
home, in Assisted Living Facilties and in Always look to the basics: hungry,
Nursing Homes. thirsty,cold, toileting needs. Pain-80%
My least favorite patient type was the of the frail elderly have chronic pain
Dementiapatient. I know now that why I that goes untreated.
felt that way wasbecause I had never Keep your phrases short and simple,"do
really walked in the shoesof the dementia you want apple juice or orange juice?"
patient. Ask questions requiring a yes/no
In caring for my mother I have come to response. Allow LOTS of time for a
appreciate her uniqueness. Watching her response.
struggle with her losses and struggling Allow choices as often as possible.
myself to come up with ideas to keep her Choices must be appropriate to their
moving and feeling good about herself has level.
really helped me to see dementia through We do not ask the three year old if he
new eyes. wants to go to bed. We take him to bed.
It is like caring for a child in reverse Choices like, "Would you like to wear
order. With a child we wait with blue or yellow today?" "Would you like
anticipation as they grow through new tomato soup or chicken noodle soup?"
stages. We watch for them to sit up, then These are an example of stage appropriate
take their first steps, potty train, choice I would give my mother.
talk, ride their first bike, and on and Avoid statements such as, "Do you want to
on. eat?" "Do you need to go to the
Well, with aging and dementia, it really bathroom?" "Are you ready for your
is thesame process in reverse. Watch shower?" Those are given tasks not
carefully for the subtle changes (losses) options.
and then make the necessary adjustments Do not ask if they want to go to the
in the environment and in ourselves. doctor, hairdresser,etc. Just take them.
For most elderly, as age advances so does Allow plenty of time for appointments.
thecollecting of chronic conditions. Dementia patients will never move on your
Chronic Conditions:to name a few time table. Lots of extra time must
arthritis, heart disease, high blood beallotted to get ready.
pressure, diabetes, poor vision, reduced Dementia patients do much better with a
hearing,reduced hearing and reduced fixed routine (just like your kids.)
muscle strength. Regular meal and snack times. (do not
Chronic diseases must be managed and it forget fluids.) Regular shower time at
takeswillingness on the part of the elder their best time of the day. Regular
and often thefamily, to learn about the bedtime. Avoid mentioning an appointment
disease, treatmentand limitations. ahead of time. Some people will stress on
Physical Changes : that and ask repeated questions.
Aging happens over time, gradually over Use distraction to change a behavior. My
years. mother has a habit of clapping her hands
Abilities decline and needs increase. loudly and repeatedly if she is not busy
The ability to clean house, do the with somethng. Sometimes just asking her
laundry,do yard work, grocery shop, a question breaks the pattern. At other
participate in hobbies, entertain in the times having her fold clothes, play
home, prepare fancy meals, handle cards, look through a magazine, or
finances,and to drive. singing a song will also break the
Physical changes often progress to pattern.Activities are a must. Some
personal care deficits fear of falling in communities have a senior center with
the shower, they stop showering,walking activites or adult day care centers that
distances that they were able to handle often do a great job with activities.
previously, toileting themseves without Find activities that your parent
accidents, stop going out especially for enjoys,walks, folding laundry, washing
social events. dishes, playing cards,etc. Be creative.
A variety of reasons will often emerge if "Remember Times" I learned all sorts of
asked why they stopped doing something. family history and fun stuff when my
Rarely will the whole truth be told. mother was inher earlier years of
Denial is very strong due to the fear of dementia. We would do "remember time."
being dependent on others and fear of We would talk about family, how she meet
being remove from their home. As the my father, their first date, hobbies,
adult children we are obligated to watch jobs, vacations, WWII, the Depression
carefully for these changes in our era, etc. Today, my mother is in her 12th
parents. year of Alzheimer's and she does not
Cognitive Changes: remember the past. Now she likes us to
When it comes to cognitive changes things tell her the family stories.
do not get any easier. Approximatly 50% THINGS TO AVOID
of 85 year old have dementia. Their Do not try to reason with the dementia
symptoms usually have been present a few person. They are unable to reason. Do not
years before diagnosis. Please read that take their behavior personally. They are
again, 50% of 85 year olds have dementia. not doing it to you, they are just doing
So many family members ignore the it. Do not confront or correct. Leave
symptoms (they also suffer from denial) the room if you have too.
Your elder usually needs help long before Do not argue. You are arguing to a blank
he or she is getting the necessary wall!
support. Do not talk about your parent in front of
Elders with dementia have often lost the them.
abilityto reason, to react logically or Do not ask them or expect them to have
correctly interprettheir surroundings. recent memory.
Often unhealthy or irrational decisions Statements like, "I just answered that
are made frequently related to safety and question"or, "don't you remember?
medications. Remember the "blank wall"!
One of the common things I hear is, "She Remember, between you and your parent,
is not my mother anymore" or "I do not YOU are the one that has to change,
know this person." You have to get past accept, grow, and love them through to
that to be helpful to your parent. the end.
I am sure you had times in your child When all is said and done you will never
raising yearswhere you felt the same, the regretthis time spent caring for your
terrible two's,teenyears, college elder. Allow this time to be as fun as
years,or even into the adult years,where possible-find your humor and use it in
you said to youself," I do not know this the daily activities of caregiving. And
person anymore." yes, it is a very difficult job caring
It is a process of accepting your for your parent.
children at thestage they are at, knowing Arm yourself with support groups and
that you are doing your best. Well, it is learn all you can about your parent's
not any different with your parent. Your dementia. Do not become the " Lone
parent will always be your parent. They Ranger". Rreach out, ask for help, hire a
just act differently as they become more babysitter, etc. Just like you did for
frail, more vulnerable, and child like. your kids, you can do this.
I often look at my mother and see a three




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